By: Chris Martin
For the third year, Fairway Wealth Management had the privilege of sponsoring the RhizoKids Ohio annual fundraiser on May 11th, 2019 at St. Adalberts in Berea, Ohio. Rhizokids supporters enjoyed a dinner followed by an evening of raffles, horse races, and auctions. The fundraiser was a great success, hosting around 300 attendees and raising more than $40,000 in support of the RhizoKids cause. Fairway was represented at the event by Chris Martin, who has been involved with the organization since 2015.
RhizoKids International is a charitable organization originally established in 2008 to support research in pursuit of a cure for Rhizomelic Chondrodysplasia Punctata (RCDP). Mindy Lee, President of RhizoKids Ohio, established the extension chapter of RhizoKids International in 2008 to further the regional presence of the organization. RCDP, a genetic disorder, is a form of dwarfism that brings with it very serious complications. It is very rare, with fewer than 100 children known to be living with condition worldwide. Currently, there is no treatment and no cure for RCDP. Over the years RhizoKids has grown into an organization that provides vital advocacy and support for families of children with RCDP. Each year, the organization hosts a conference in Alabama to bring together leading doctors in the field with the families of children with RCDP. Additionally, RhizoKids International provides grants for research projects, sponsors the RCDP Registry and A.I. duPont Hospital for Children, and works to bring national awareness.
Hope for a treatment for these children grew in 2018 as Med-Life Discoveries shared information on the development of PPI-1040 as an experimental treatment for RCDP, with a focus on a planned clinical trial. Fairway Wealth is proud to partner with RhizoKids Ohio as they continue their efforts to raise awareness and hope for children with RCDP.
If you would like to learn more about RhizoKids Ohio and RhizoKids International you can visit www.rhizokids.com and www.rhizokidsohio.com. To read more about the progress of the potential therapy, you can visit www.rhizotrial.org.
